Book
A face for Picasso : coming of age with Crouzon syndrome : a memoir
Record details
- ISBN: 9780374314071
-
Physical Description:
print
regular print
378 pages ; 22 cm - Edition: First edition.
- Publisher: New York : Farrar Straus Giroux, 2021.
- Copyright: ©2021
Content descriptions
| Bibliography, etc. Note: | Includes bibliographical references. |
| Target Audience Note: | Ages 12-18 Farrar Straus Giroux Books for Young Readers. Grades 10-12 Farrar Straus Giroux Books for Young Readers. |
Search for related items by subject
| Subject: | Henley, Ariel -- 1992- -- Health Craniofacial dysostosis -- Patients -- Biography Young adult literature |
Available copies
- 1 of 1 copy available at University College of the North Libraries.
Holds
- 0 current holds with 1 total copy.
Show Only Available Copies
| Location | Call Number / Copy Notes | Barcode | Shelving Location | Holdable? | Status | Due Date |
|---|---|---|---|---|---|---|
| The Pas Campus Library | RD 763 .H38 2021 (Text) | 58500001128594 | Stacks | Volume hold | Available | - |
Summary:
"A YA nonfiction story about Ariel and her twin sister's experience living with Crouzon Syndrome"--Provided by publisher.
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience and the strength it takes to put your life, and yourself, back together time and time again.
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience and the strength it takes to put your life, and yourself, back together time and time again.
