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Ownership, control, access, and possession (OCAP) or self-determination applied to research a critical analysis of contemporary First Nations research and some options for First Nations communities. Cover Image E-book E-book

Ownership, control, access, and possession (OCAP) or self-determination applied to research a critical analysis of contemporary First Nations research and some options for First Nations communities

Summary: The principles of ownership, control, access and possession (OCAP) crystallize themes long advocated by First Nations in Canada. Coined by the Steering Committee of the First Nations Regional Longitudinal Health Survey, the principles are discussed as an expression of self-determination in research. The key notions outlined in this paper relate to the collective ownership of group information; First Nations control over research and information; First Nations? management of access to their data and physical possession of the data. Following a critical review of colonial research practices and recent institutional efforts to improve ethics in Aboriginal research, this paper highlights policies and strategies adopted by First Nations organizations ? approaches which offer a way out of the muddle of contemporary Aboriginal research and the ethical dilemmas that characterize it. The benefits of OCAP are described including the rebuilding of trust, improved research quality and relevance, decreased bias, meaningful capacity development, and community empowerment to make change.

Record details

  • Physical Description: electronic
    electronic resource
    remote
    1 electronic text (37 p.) : digital file.
  • Publisher: [Ottawa, Ont.] : National Aboriginal Health Organization (NAHO) = Organisation nationale de la santé autochtone (ONSA) = Kanatami Nunaqaakaaqsimajunut Aanniarnanginnilirinirmut Katujjiqatigiit, [2005]

Content descriptions

General Note:
"October 2005."
Bibliography, etc. Note: Includes bibliographical references (endnotes): p. 35-37.
Formatted Contents Note: Where Research has Gone Wrong -- How Research Has Tried to Right Itself -- New Ethical Guidelines -- Aboriginal Rights and Jurisdiction -- Defining the Researcher -- Model from the United States -- Model from Northern Quebec -- Capacity and Quality -- OCAP in Practice -- Resistance -- Strategies -- First Nations Research Policy -- Data Ownership and Data Sharing -- The Benefits of OCAP.
System Details Note:
Mode of access: World Wide Web.
Subject: Medicine -- Research -- Moral and ethical aspects -- Canada
Medical care -- Research -- Moral and ethical aspects -- Canada
Indians of North America -- Medical care -- Canada
Ethics, Professional
Health Services Research
Indians, North American -- Canada
Native peoples -- Medical care -- Canada

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